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Charlie Gard’s Parents Have New Fight With UK Hospital

On Monday, Charlie Gard’s parents decided to stop their legal battle for experimental treatment for their son after tests showed that Charlie’s muscles had atrophied and the treatment would likely not work. Some are reporting that had the court not taken so long to decide the child’s fate, Charlie might have had a chance for a healthy life.

But now, with the family staring down impending death, there is a new fight between the parents and Great Ormond Hospital in London—the hospital won’t allow Charlie’s parents to bring their baby home to die.

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Life of Charlie Gard Still Hangs in Balance, U.S. Legislators Intervene

Harvard-trained neurologist Michio Hirano spent five hours examining 11-month-old Charlie Gard in London on Monday to see if he would be a good candidate for experimental treatment in the United States. Hirano, who specializes in Charlie’s rare form of mitochondrial depletion syndrome and would perform the experimental therapy, says his treatment might save the British baby’s life.

Results of a lengthy brain scan on Monday and Tuesday were given to British High Court Judge Nicholas Francis, who will determine by next Tuesday whether Great Ormond Street Hospital will take away Charlies’ life support or will allow him to get the experimental treatment in America.

In the meantime, however, U.S. lawmakers in the House passed an amendment to a Homeland Security Appropriations bill that, if signed into law, would grant little Charlie and his parents permanent resident status so he could obtain treatment in the United States. This latest twist could mean that Charlie’s parents may no longer need British medical permission to care for their son.

Incidentally, while Charlie has found many advocates willing to fight for his life far from home, Charlie’s government-appointed British lawyer, Victoria Butler-Cole, is anything but pro-life. As the chairman of Britain’s Compassion in Dying, Butler-Cole would likely opt for euthanizing the infant.

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Battle for Charlie Gard’s Life Continues

Last week, we reported on the case of 11-month-old British baby Charlie Gard, who is suffering from a rare genetic disorder and having life support taken away despite pleas from his parents due to a ruling from the European Court of Human Rights.

Since then, both President Trump and Pope Francis have offered their help. Trump is going to discuss the matter of Charlie’s life with British Prime Minister Theresa May at the G20 Summit in Germany today, while Pope Francis has offered the Vatican’s pediatric hospital for care of the baby. If the Vatican cannot help, an unnamed hospital in the U.S. has offered to treat Charlie free of charge.

Whether Charlie lives or dies, this case is important in determining who has the ultimate say about the life of a child, the courts or the child’s parents?

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British Parents Not Allowed to Intervene to Save Ill Child

UK parents Chris Gard and Connie Yates have a hospitalized 10-month-old who was diagnosed at only eight weeks with a rare genetic condition that causes brain damage. They were hoping to send little Charlie to America for experimental treatment and have raised almost £1.4 million ($1.8 million) to do so through a GoFundMe account.

But the British Supreme Court and now the European Court of Human Rights ruled that baby Charlie was probably suffering pain and should have his life support removed. This week a plea from the parents to intervene in the case was denied.

It’s scary that neither the love of parents nor money for life-saving treatments can rescue a child from a messed-up legal system that literally gives a death sentence!

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